Blog Detail
Beth's Myeloma Blog
http://www.myelomablog.com
Ramblings and rants about my life, including my myeloma experiences. Myeloma is a cancer of the plasma cell. There is currently no known cure, but many advances in treatment have been made.
Recent Posts
My two m-spikes
I wanted to post my results, and got a little behind! Here it is: SERUM PROTEIN ELECTROPHORESIS: COMPARED TO 6/1/09, NO SIGNIFICANT CHANGE IN PREVIOUSLY CHARACTERIZED (2) IgA-LAMBDAS FROM 0.25 TO 0.26 G/dL AND FROM 0.19 TO 0.15 G/dL. The two m-spike...
Dr. Brian Durie to host a teleconference
Dr. Brian Durie, Chairman and Medical Director of the International Myeloma Foundation, will host a teleconference next week to highlight key myeloma presentations at the upcoming American Society of Hematology Annual Meeting. The teleconference wil...
H1N1 flu that’s resistant to Tamiflu
I just read about a strain of H1N1 flu that’s resistant to Tamiflu. Four of these cases have been reported at Duke Medical Center in Durham, North Carolina. I wondered if it has possibly infected people in the transplant clinic? A friend had ...
Three Harpsichords
We went to a concert Friday night in Chapel Hill that featured three harpsichords! The program included music by Bach and a local composer named Edwin McLean. I really enjoyed McLean’s music, and will be looking for a CD. One of the perfor...
Advancing Rare Disease Research: The Intersection of Patient Registries, Biospecimen Repositories and Clinical Data
Subject: Advancing Rare Disease Research: The Intersection of Patient Registries, Biospecimen Repositories and Clinical Data The Office of Rare Diseases Research, National Institute of Health, is sponsoring a workshop entitled “Advancing Rare D...
International Myeloma Foundation’s 3rd Annual Comedy Celebration for the Peter Boyle Memorial Fund
Ray Romano hosted the IMF’s third annual Comedy Celebration for the Peter Boyle Memorial Fund a few days ago. I’m so glad to see the IMF getting these big names to help raise money for research. Every life lost to myeloma is an important ...
Just came across your blog as I search the internet for info on MM. My wife was diagnosed with Stage 3 IgA Lambda in late October and is currently taking velcade, thalidomid and dex. She seems to be responding well to the treatment but we still have ongoing questions about the treatment. Have you or others had any experience with revlimid and, if so, what sort of outcome have you had? Also, what reference ranges did you look for to determine if you were in remission? We now get results for IgA(currently 1100 down from 5500), M-Spike (currently .5 down from 5.3) and Lambda (currently 1900 mg down from 1900). These are results from her second of four total rounds of chemo.From what I can tell, these are still high but moving closer to normal ranges. Once we finish the final round of chemo, we are moving toward a stem cell transplant using her own cells. I have read your blog and found it to be an honest account of what you have experienced and very helpful to me as we become more familiar with the disease and its treatment. Any help you or others could offer in answering these questions would be greatly appreciated!
Posted: January 14th, 2009 | Report This Comment