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Every Patient's Advocate
http://trishatorrey.com
Patient empowerment, advocacy, medical consumerism and tools to navigate the dysfunction of American health care.
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Recent Posts
Patient Safety Day, “Independence” Takes on a New Meaning
Sometimes the best way to accomplish the most is to get good heads together for conversation, brainstorming and more. Some of those names we hear over and over again in the patient safety world were able to join forces at a picnic in Aiken, South C...
Heather, SPTCL, the Next Chapter - Hang on to Your Hat!
[To catch up on previous chapters of Heather's story, link here (post #1) and here (post#2.)] Heather had her first oncology appointment today. She was lucky to get in so quickly after her primary care physician ditched her (that still makes me shu...
CNN’s Heroes of Patient Empowerment. A Humble Thank You.
There aren’t many times that I am left speechless, but this is one of them. If you are a regular reader of CNN’s Empowered Patient, offered each week by Elizabeth Cohen, then you know there have been any number of outstanding advocates fe...
Heather, SPTCL, Another Misdiagnosis and Doctors Who Should Not Practice Medicine
Here’s the good news: Heather does not have SPTCL. Here’s the bad news: Heather does have another type of T-cell lymphoma called CGD-TCL, cutaneous gamma-delta t-cell lymphoma. Also written with Greek letters: cutaneous γ/δ T-ce...
Misdiagnosis, a Visit to the Lab and One Last Point
For those of you who have read my misdiagnosis story, you know that one of the ultimate heroes was the pathologist (I’ll call him Dr. H.) who helped me understand how the misdiagnosis happened. Even though he was one of the doctors responsibl...










