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fighting AMY - My Journey into the World of Amyloidosis
http://www.doughasamyloidosis.blogspot.com
This is a daily journal of my fight against a rare, insidious, fatal disease about which little is known.
It is my attempt to raise awareness in the hope that the medical community and the public will wake up and see it for what it is.
If just one person gets a proper diagnosis in time to save their life, I have succeeded.
Recent Posts
December 3, 2009 - Day 227
The holiday season is on us now with full force demanding our attention wherever we look whether it is the corner lot where they sell trees, billboards staring us down as we cruise the highway or the decorations that our neighbors have on display.I t...
December 2, 2009 - Day 226
A little bit of sleep was had today as the steroid kick wound down. It felt good after being awake for so long to be able to rest my body and my mind and escape from what is going on.I just spent the day in bed drifting in and out of movies and catch...
December 1, 2009 - Day 225
It is not so bad having the chemo after a two week vacation with the exception of not having slept in the last 48 hours due to the Dexamethasone having me all jacked up. Maybe tonight I'll be able to pop a couple of Ativan and just pass out for a few...
November 30, 2009 - Day 224
Round 3 Dose 1 of my Velcade/Dexamethasone is in the books.My conclusion is that the treatment, even with its side effects is better than the chemo vacation that I just took.It seems that as my body worked to heal itself from Round 2, the fatigu...
November 29, 2009 - Day 223
Tomorrow is Velcade and Dex and it is coming none too soon as far as I am concerned.This chemo holiday that I have been on has been anything but a vacation.The fatigue that has accompanied has been as bad as any I have experienced and I hav...
November 27, 2009 - Day 221
A rather bittersweet day as I wrapped up my visit with some of the family who are leaving tomorrow to head back to Michigan and to DC.My mom, my youngest brother and one of my nephews will be around for a couple of more days, so I'll get weaned ...

