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Recent Posts Tagged With 'cfids association'
New ME/CFS Awareness Video…Please Watch
Related posts:ME/CFS Awareness: What You Can Do Each year, May 12th is designated as International CFS...P.A.N.D.O.R.A – Inspiring Hope Through Awareness P.A.N.D.O.R.A. is busy this month with awareness activities and...ME/CFS & Fibr...
Results of CFIDS Association ME/CFS Symptoms Survey
I previously took a survey by the CFIDS Association regarding ME/CFS symptoms and which ones were worse. The CFIDS Association has revealed the results of that survey and I thought readers might find it interesting. Here is a little bit more abou...
CFIDS Association Anonymous Survey – Take It Today!
The CFIDS Association has an anonymous survey that you can take that closes tomorrow at midnight on August 31st. What is the survey about? According to the CFIDS Association: This profile survey will help us get a better idea about the everyday ...
August News from the CFIDS Association
Post-Mono CFS in Teen Girls Ben Z. Katz, M.D., of Northwestern University has just published results from a study of teens who were followed for two years after the onset of acute infection with Epstein-Barr virus (mononucleosis). The article is publ...
July News from the CFIDS Association
From the Desk of Kim McCleary Summer is often a time to “go with the flow.” But CFS patients, perhaps as many as 70% of them, who experience forms of orthostatic intolerance (OI) generally find that summer is a better time to “lay low.” OI is...
Tell CDC To Change Their Research Plans for ME/CFS!
I received an email the other day from the CFIDS Association regarding their hard work in trying to get more research efforts from the CDC on ME/CFS. Show your support by leaving your comments to the CDC no later than June 30th. Please read the e...
June News From the CFIDS Association
From the Desk of Kim McCleary It’s rare that I lose my cool in public. But having attended 15 meetings of the Department of Health and Human Services CFS Advisory Committee (and a dozen or so of its predecessors’ meetings), I found it mo...
25 Random Things About CFS (Courtesy of CFIDS Association)
For those of you who belong to Facebook (click HERE to see my page & to become my friend!), you have probably seen or been a part of the widely popular “25 Things About Me” that everyone is doing. The CFIDS Association President, Ki...
Public Input Sought On CDC’s 5-Year Plan for ME/CFS Research
I received an email from the CFIDS Association on two upcoming public meetings that are to be held to discuss the CDC’s 5-year plan for ME/CFS research. If you would like to attend, or just want to attend and give public testimony, here is...
