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Fragile What!?
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The blog follows a blended family through their lifetime journey with fragile X syndrome. It has news articles related to FXS, funny stories from the kids, and daily journal.
Recent Posts Tagged With 'beth'
Blonde Moment of the Week
I learned the real reason my mother dies her hair blonde. Because it is her natural “mental” color. Beth’s mom: When you move what are you going to do with your furniture. Beth:...
Morning LOL
Kevin: Honey you really need to get up. It’s getting late. Beth: Ugh. Can’t I just work out of the bed? Kevin: That would mean that you were a whore. I got in the shower. He...
Mini conversations
Beth: Bedtime, time for smooches. Rachel: Ewww….no kisses. Beth: What!? No kisses. Why not? Rachel: You didn’t sign the contract. Beth: Your birth certificate is your signed ...
Post Op Appointment
I had my post op appointment this morning. It went okay. My normal doctor is on vacation so I was stuck with a guy doctor. I don’t like guy doctors. Growing up with years of sexual abuse...
Doctor Called
My doc called on Thursday. She gave me the pathology report. For those who aren’t good with medical jargon, a pathology report is the results of the testing they did on the organs that they ...
Post Surgery Update ~ 1 week
Wow, it’s been a week hasn’t it. First off, I am so ready to do something productive. I don’t care if it is cleaning house, going to work, selling lemonaid on the street corner, ...
come on already
Ya know how when you injure a part of your body it seems like every time you turn around you bump that same darn sore spot. Well, I’m dealing with that kind of thing but in a slightly differe...
Not right
When I had surgery they put a breathing tube down my throat. My throat is really sore now. When I talk it sounds really raspy. And I have to speak softly because if I don’t my ribs hurt. ...
Relief
I got a call from the hospital late this morning. The nurses in the OR were checking up on me. After lunch my doctors nurse called to check on me too. The poor nurse has seen me soo much the pas...
Home!
I am home from my surgery. Everything went pretty well. The only thing that happened was that the nurse accidentally blew out a vein during the first try at the IV. But she worked her magic and ...
Girls Day
Us girls had a very rare treat yesterday. A girls day!! I had to work the morning but I had the afternoon off to go do my pre-op appointment. Since Matty was still with his paternal grandparents...
Kudos
I got some very unexpected kudos yesterday. My supervisor was asking me something about fragile x. Here’s the convo. Supervisor:  With all your medical knowledge you should be a doctor. B...
Cup Size
We just got back from the big big city and my little brothers wedding. His wedding was beautiful. His wife did good. I’ll be sharing some landscape pictures and stories in the days to come.Â...
Pay no mind to this post - just needed to vent
I feel like I am in a room of mirrors with no way out. The walls are slowly closing in on me. If I was a drinker I would sit in a corner and drink myself to oblivion. My little brother’s wed...
Blasted
I feel like the queen of one word titles lately I hit a bump in the road at work. Let me give you a little background. I work in the banking industry at the front desk. I’m not just a re...
I must be cool!
Last night I came home from work in some serious pain. I spent 99.9% of the evening in bed. Most of the kids like to hang out in my room with me when I don’t feel good. They don’t wa...
Determined
I like having a mission. I would have been amazing in the military. They knew it too. I took that ASVAB test in high school not knowing what it was for. I got perfect scores in two sections. A...
Angry
I am so angry about this upcoming surgery. You have no idea how mad I am. I don’t fault anyone. Everyone involved were only doing what was best. There was sincere thought and concern int...
Another Day, Another Surgery
I will have surgery on July 17 to have my ovaries removed. Not much else to say....
Ok…ok…
beartwinsmom Says: June 11, 2008 at 7:48 pm   edit I’m frustrated along with you, dear! So when are you going to fuss at your doc to do a laproscopy and take those darn ovaries out???? You should...
Brain Block & My Birthday Presents
Don’t you just hate it when you have a really funny story to share…and you FORGET it?!?! There is this conversation that I want to share about Rachel but I can’t remember now what th...
need….aaiirrr
This stuff is horrible. I feel like I have an elephant on my chest. I can’t seem to get enough air. Quite a few times I’ve stuck my head in an open window to get air. Thank goodnes...
Sicko’s
I stayed home today because I was feeling pretty crappy. At about 11:30 Lauren called me and wanted me to get her from school. She was feeling really crappy too. I decided then and there that we w...
Sick…again :(
I have an immune-mediated disease, psoriasis. Most people assume that it is confined to a patients skin. But researcers have learned that it has even farther reaching implications. Though I have n...
Woohoo!!
The other day I was whining about how much I hate English. Well, classes wrapped up on Monday. I went into my college account last night to see if final grades have been posted. And this is wh...
Not Friends
English is going to drive me insane. I would rather be on a short bus surrounded by autistic children having severe meltdowns that doing English. This class is going to drive me batty. I’m...
Wicked Stepmother
Well, I’m officially a wicked stepmother. I wouldn’t go pick up Austin from school. I had called the school earlier to have him walk since I’m home with Rachel. After school he c...
Be My Mommy?!
As my grandma would say, I got thrown for a loop this morning. Lauren: I love hanging out in the bathroom with you in the mornings. Beth: Do ya?! Lauren: Yeah. What would it take for you t...
The Verdict
That was easily the LONGEST visit to the doctor ever!! My appointment was at 9 but no one told the doc she had one that early. So she strolls in at 9:30 thinking she is good to get prepped for the n...
Crush My Heart
As some of you know, Kevin and I have primary custody of his children. Their mom’s home was not a good place for them to be. While Kevin was running the other kids around this afternoon, Aus...