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Fragile What!?
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The blog follows a blended family through their lifetime journey with fragile X syndrome. It has news articles related to FXS, funny stories from the kids, and daily journal.
Recent Posts Tagged With 'kids'
Matty’s Class Trip
Matthew and his class had a field trip on the 19th to Golden Corral and our local nature center. I’m not used to life with lunch at work. Therefore, at first I didn’t think anything of the field trip. However, I realized that I have to eat ...
Cast for Kids
Last Saturday was our annual Cast for Kids even. Cast for Kids is AMAZING!! Seriously, if you have a special needs child, check out the website and see if an event is going on in your area. It is so much fun and the kids love it. And it’s...
Catching Up
Wow! So much has happened over the last 3 weeks. Everyone has had a little bit of a change in their lives. Kevin I gotta say my hubby has done of the hardest things in the world…started to let his little girl go. I don’t think it he...
Respite Go Away!
I haven’t gotten to snuggle my babies in over 48 hours. I want them home. Now Posted in Daily News Tagged: autism, fragile x, kids, respite, special needs ...
Not on Call
Do you know what the first thing I do when I wake up? I think about Matthew. No, that’s not sweet. I don’t want to deal with peed or pooped in 12 year old underwear! So my first thought is, “Is Matt awake?” It’s ...
It’s a Miracle!!
We have NO kids tonight Rachel is going to her dads. Matthew is going to his grandparents. Austin is staying at a friends. Lauren is staying with my in-laws. Ya know what this means. HOT DATE!!!! I’m planning on Kevin and I going to ChiliR...
Bullying Intensified
Kevin and Austin took Austin’s cell phone to the principal yesterday morning. I was home sick so I wasn’t able to make it. The principal took down the numbers and what the threats said. He plans to trace the two numbers and handle i...
From Respite to Insanity
This may be one of those hit and miss weeks on my blog. I try to update every day but this is my week: Monday: Work Help with soccer registration 6-8p Then do all the fun evening stuff I normally do 10:00 - I HAVE to watch Secret Life Tuesda...
No Kisses
Wednesday night I went into the little kids room to tuck them in for bed. But Matthew wasn’t having any of it. He doesn’t like the hugs and the kisses at bedtime. He just wants to get to the business of sleeping. If only he slept l...
silly conversation with rachel…
Rachel was really missing Kevin last night. She wanted to go with me to pick him up from work. Unfortunately, he wouldn’t have gotten home till past her bedtime. Shortly after I tucked her into bed, Kevin called to let me know that a cowo...
One Smart Turkey
I heard Matty making his normal grunts and groans in his room this morning. He will keep getting louder and louder until we tell him to get up and head to the potty. I went into his room and flicked on the bedside lamp. But before I could tell h...
I was tagged - 4/4
I was tagged like a week and a half ago by The X Mom. Sorry it took me so long chicka So the rules of the game are like this: Go to the 4th picture file on your computer and then post the 4th pic in that file… We all know that I don’...
UN! UN!!
Lauren, Austin and I got home last night and started to get the pups outside and stuff when there was this deafening sound. And it wouldn’t go away. We looked outside and it was hailing so hard! Well, Matthew and Rachel attend an after scho...
And another one bites the dust…
Lauren ended up sick yesterday. She is 100% blaming it on Matthew and I don’t blame her. Matthew is doing a bit better though. He didn’t have a fever yesterday though he still had the runny nose. This morning he started out with ...
And these are the days of our lives…
Beth I’ve been home since Monday’s appointment. I’m a mixture of sore, hurting and depressed. Seriously, how many years do I have to keep having pain down there and continue to get violated! As of February it will 2 years sinc...
Pimples or Rash!?
Part of Matt’s fragile x is that he doesn’t feel pain. This also means that if he is itchy he doesn’t tell us. This morning he got home from his respite weekend with his grandparents. I noticed he had little pimples on his chi...
not THAT!
Kevin has been more vocal this election than the last one. One reason is because we are complete opposites when it comes to our political beliefs but this year I agree with a lot of what he believes. The other reason is that in 4 years both Austin &#...
Pumpkin Patch 2008
Matthew’s favorite part of the year is going to the pumpkin patch. He starts talking about it at the beginning of October and doesn’t let up until we finally go. I think everyone had a good time. It was a beautiful fall day. ...
Ugh!
Have you ever been so stressed out that you don’t know if you want to puke, die, or beat your self senseless on the nearest wall!? I’m there! Posted in Daily News Tagged: Beth, investments, kids, moving, parenting, sto...
The kids
I promised updates on my little heathens on Friday so here they are. ( I can’t really call them little since half of them are taller than me, huh!?) Lauren Miss Lauren is doing great. It’s amazing what a wonderful young lady she has b...
My-Grain!! Ow—eeeee
Too much stress + big fat migraine = escape to deep dark dungeon I spent my afternoon, evening and night locked up in my nice little dark room last night. After a week of ups and downs with our house, federal examiners in my office (they are routi...
