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Fragile What!?
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The blog follows a blended family through their lifetime journey with fragile X syndrome. It has news articles related to FXS, funny stories from the kids, and daily journal.
Recent Posts Tagged With 'lauren'
.5 of an update
Lauren texted me earlier to let me know that they put her on a waitlist to change out her classes. She is bored out of her mind today. Most classes are doing the whole thing on what the class is a...
Nervous Mommy
Today is our first day of school. I’ve been up since 4:30. I’m terrified. Matty has a new sp-ed teacher and school. Rachel has a new school. Austin has a teacher he needs to cha...
Mini conversations
Beth: Bedtime, time for smooches. Rachel: Ewww….no kisses. Beth: What!? No kisses. Why not? Rachel: You didn’t sign the contract. Beth: Your birth certificate is your signed ...
Girls Day
Us girls had a very rare treat yesterday. A girls day!! I had to work the morning but I had the afternoon off to go do my pre-op appointment. Since Matty was still with his paternal grandparents...
I must be cool!
Last night I came home from work in some serious pain. I spent 99.9% of the evening in bed. Most of the kids like to hang out in my room with me when I don’t feel good. They don’t wa...
Sweet 16 pictures
The post explaining these pics are here. ...
Lauren’s Sweet 16 party
The pics are still on my camera, with Lauren, on their way back home from Phoenix. So, I’ll post the details today and the pics tomorrow The party was good. Her cousin and her good friend ...
Party
Party was good. Girls had fun. Mom is exhausted. Details when brain cells come back alive....
Sweet 16 time
Tonight is Lauren’s Sweet 16! She seems quite excited. I think it will be a fun time. We are going to do cheesecake in an ice cream cone instead of a birthday cake. Then we are going to...
need….aaiirrr
This stuff is horrible. I feel like I have an elephant on my chest. I can’t seem to get enough air. Quite a few times I’ve stuck my head in an open window to get air. Thank goodnes...
Sicko’s
I stayed home today because I was feeling pretty crappy. At about 11:30 Lauren called me and wanted me to get her from school. She was feeling really crappy too. I decided then and there that we w...
Party Plans A-brewing
I mentioned a couple of your ideas to Lauren. She received them much better than I expected. I thought she was hard-pressed on having a dance. Thankfully, she wasn’t and we were able to be...
Beee-u-teee-fulll
Lauren had her spring choir concert last night. She was awarded with a solo in the song Dink’s Blues. It was AMAZING!! She hit the notes perfectly. She was poised and you couldn’t ...
Sweet 16!?!?
I need help from all of you with girls older than 16 or know anyone with a girl older than 16!! Lauren will be 16 on June 3. We want to do something nice for her. But what she wants is over the to...
Not Friends
English is going to drive me insane. I would rather be on a short bus surrounded by autistic children having severe meltdowns that doing English. This class is going to drive me batty. I’m...
WTG Lauren!!
Lauren has been auditioning for a solo in the spring concert this past week. And She got one!! She called me during her lunch yesterday and squealed in my ear. She is very excited. Lauren has a...
R.I.P. Sunset
Lauren’s parakeet passed away this evening....
Be My Mommy?!
As my grandma would say, I got thrown for a loop this morning. Lauren: I love hanging out in the bathroom with you in the mornings. Beth: Do ya?! Lauren: Yeah. What would it take for you t...
Wrap-up of the Day
I was a good girl today. I didn’t overdue it. Promise. My supervisor even told me to tell my hubby that she was sending me off looking pretty good. She cracks me up. She is like my su...
A List of Updates
I’m feeling “listy” today. Matt’s new toothbrush is still a hit and is working really well. It actually gets his gum line which is something that has never happened befor...
“Mean Girls” in Real Life
Lauren had a really tough life experience last night. She had a “friend” who was having a slumber party for her birthday. Part of her party was going to a movie. I had made appointme...
Dinner
It was one of those days for Kevin. He was out doing a bunch of errands all day today. He was so busy that he even forget to pick up Lauren on the way home from town. He was totally on auto pilo...
Band-aid for Snorts
Matty always wakes up before the sun rises on the horizon. He is a good boy though and usually just stays in his bed. If he does “get up” it is just to stare out the window above his bed...
Things I Have Learned While I’m on Bedrest
As Suzanne said recently on a comment, I am one of those super Type A people mainly cuz I’m a fragile x carrier. So it’s nothing for me to be a mom, a wife, a full-time student, & a ...
Great Teens
Today was parent-teacher conferences for Lauren and Austin. I didn’t get to go, obviously, but Kevin went and gave me the full report. I don’t think I have ever been sooo proud of two ki...
Casualties of Snow
When it snows, it hurts. Rachel is home sick today. Kevin had to go get her from school yesterday because she was running a fever of 102.5. She has a Rudolph nose and a frog in her throat. Poor...
Musical bedrooms
Back in August, I shared that I was splitting up Lauren & Rachel’s room, and putting Rachel’s bedroom in half of the living room. Well, we played magical bedrooms once again. Austin ...
Another Snow Day
Woohoo!! The only bummer is that I was home yesterday due to tummy pain. I still hurt a smidge but I’m okay enough to go in. But I can’t. This snowfall was worse than the last one ...