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The blog follows a blended family through their lifetime journey with fragile X syndrome. It has news articles related to FXS, funny stories from the kids, and daily journal.
Recent Posts Tagged With 'rachel'
Nervous Mommy
Today is our first day of school. I’ve been up since 4:30. I’m terrified. Matty has a new sp-ed teacher and school. Rachel has a new school. Austin has a teacher he needs to cha...
Mini conversations
Beth: Bedtime, time for smooches. Rachel: Ewww….no kisses. Beth: What!? No kisses. Why not? Rachel: You didn’t sign the contract. Beth: Your birth certificate is your signed ...
Rachel’s Funny Fill-in
Rachel and I did a funny fill-in from her National Geographic Kids magazine. She wanted me to share it with you on the blog * * * I designed the fastest volcano ever for my school’s scie...
Transition Sequence Begins
Last year I had 4 kids in 4 different schools. So to Matty that meant that everyone had their own school. This year Rachel is moving up to the school Matty was in. And Matty is moving up to Aust...
Ex
I told Rachel’s dad we are moving 1000 miles away. If you have read my blog long enough you would know that his is constantly bailing on his visitation weekend. He rarely comes to her extrac...
Girls Day
Us girls had a very rare treat yesterday. A girls day!! I had to work the morning but I had the afternoon off to go do my pre-op appointment. Since Matty was still with his paternal grandparents...
Rachel’s Good Day!!
Rachel had a kick butt kind of day!! Counseling Both girls had counseling today. Rachel went first. She has been having a hard time with Lauren. Lauren has been having a hard time letting go of ...
Reading
Rachel is reading to me. I know. It’s not rare for a 9 year old to read to her parents. What is rare is that she is reading this!! This is a child who was reading below a kindergarten le...
A Happy Post
i really wanted to post something happy and positive. I’ve been searching my brain for a funny story or something and i can’t find anything. I know there are tons in there but none I&#...
OMG she has BMG!!
Yesterday, Rachel came to me with a little problem. Her tongue was a little sore. She had me look at it. It was disgusting. Lauren described it best. It looked like it was balding. She had...
IEP, Dentist, & Counselor
Rachel has had some great appointments this week. IEP Her IEP went really well. She officially tested out of speech therapy this year. Woohoo!! U go girly. That made her IEP go a lot smoother....
Loooo-serrrrr
I just had quite an interesting conversation with Rachel’s sperm donors mother-in-law, Gretta. She is not a very happy woman with her son-in-law. I called to find out if Rachel would be goin...
Evil Librarian update…
After I posted this afternoon, I roamed my bank thinking about a plan of attack. I decided I needed a few more details so I shot off this email to Rachels teacher: After you explained how Rachel w...
Mama Bear is about to eat a Librarian
I just got this email from my daughter’s regular ed teacher: Could you help Rachel remember her library book? She forgot it at home today (they were to leave them at school). The librarian ...
Crash and Burn
Rachel didn’t make it. I got a call at work at 10 from the school nurse. Rachel was laying down in her office. I hate that my office is 30 minutes away from the school. I went a smidge o...
Little Better
Rachel was feeling a little bit better this morning. I would have kept her home because she had a low grade fever and a slight tummy ache. But she hates to miss school. And I mean HATES it!! S...
this could be bad…
Rachel has been feeling terribly icky since Saturday. Kevin and I tossed around constipation, depression or both. This afternoon a fever set in hours after she had a bowel movement. I didn’...
Depression?
I have Rachel home from school today. Her tummy is really hurting her. I think she is constipated. But I think it could also be stress or stress-related constipation. I feel horrible for her....
Deadbeat Dad Free to any Home
Rachel’s dad drives me batty!! Rachel is such an amazing child and I don’t see why he can’t see that. On top of that she has special needs that he needs to be aware of but he doe...
You Are What You Eat
Rachel: Mommy, you know that Beneful dog food commercial. Beth: Yeah. Rachel: Well, if you eat Beneful dog food will you turn into a dog. Beth: (trying to hold back laughter) No honey. Rache...
The IEP
I stumbled across this poem and had to share it. It is just in time for the spring season. It is the teacher’s view of an IEP. Many parents who have special needs and learning disabled chi...
Wrap-up of the Day
I was a good girl today. I didn’t overdue it. Promise. My supervisor even told me to tell my hubby that she was sending me off looking pretty good. She cracks me up. She is like my su...
A List of Updates
I’m feeling “listy” today. Matt’s new toothbrush is still a hit and is working really well. It actually gets his gum line which is something that has never happened befor...
Good Find :)
So (do you guys ever realize how much I use the word so? It’s like my written way of verbally saying “um.”) Okay so I got off track a smidge there. So I have had this personal...
Dinner
It was one of those days for Kevin. He was out doing a bunch of errands all day today. He was so busy that he even forget to pick up Lauren on the way home from town. He was totally on auto pilo...
Soccer Solution
Last fall we had a huge issue with the soccer program. If you want the complete, painful, day to day drama it is posted on these dates: 10/27/07 ~ Am I Out of Line?! 10/29/07 ~ League Director Res...
Things I Have Learned While I’m on Bedrest
As Suzanne said recently on a comment, I am one of those super Type A people mainly cuz I’m a fragile x carrier. So it’s nothing for me to be a mom, a wife, a full-time student, & a ...
Conferences for the “little kids”
Ya know, we are used to called Lauren and Austin the “big kids” and Matty and Rachel the “little kids.” I wonder if that will still be how we differentiate them when they are...
What!!!!
Sometimes we don’t notice when our wee ones are listening. Take tonight for example. Kevin and I were talking and forgot that Rachel was in our bathroom. Kevin: The doc is sending me to th...
no luv scenes
this is sooo like Rachel when we watch tv moar funny pictures...