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Let Me Live

Let Me Live

http://medinthemist.blogspot.com

I am a long term student with Cystic Fibrosis. I dont intend to make this a running commentary on the current status of my condition, but to list, explore and highlight the problems I encounter day to day with the NHS, my University and anything else which gets in my way.

subscribe Recent Posts

  • Welcome to the adult CF clinic. Your going to die.

    Posted on Monday December 1st, 2008 at 14:13

    I dont actually know anyone else with Cystic Fibrosis, I was always taught at clinic not to make friends with others because of cross-infection. My mam however knows a few parents of kids with CF.One of them has recently semi-migrated to the Adult cl...

  • Payment by Results

    Posted on Saturday September 27th, 2008 at 11:39

    My CF nurse from Sunderland was here earlier this week to flush out my Port-a-Cath. She was talking me through a recent conference she'd been to, updating me on the up's and down's of CF research and thinking. She also mentioned that the government w...

  • The future is now

    Posted on Friday August 22nd, 2008 at 14:16

    I have a job now.It certainly hasnt been an easy road to even finding out whether I am allowed to work, never mind getting a job itself. I was previously given a big piece of mis-information by a number of individuals and employment charities that as...

  • The future

    Posted on Saturday March 15th, 2008 at 13:34

    Its been some time now since I graduated from University. I took some time out to recover from the stresses of it and re-analyse what exactly to try and do with my life from now on. Ive managed to keep myself reasonably busy and my mind active but I ...

  • Dont be silly, hospitals dont give out medication

    Posted on Friday September 21st, 2007 at 08:19 in stupid nhs

    Im currently having injections.Injections consist, essentially, of two different sets of requirements. Firstly, is the equipment required to administer them, touched on here. Secondly is the medication itself.There are 3 different ways of medicating...

  • Flabby Arms

    Posted on Thursday July 5th, 2007 at 13:51

    A family friend was, until recently, very over weight. And I mean very.She hasnt particularly had an easy life, but has started to pull things together over the last couple of years and through doctors advice has changed her diet and enrolled in a gy...

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