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Our Voice of Sickle Cell Disease

Our Voice of Sickle Cell Disease

http://sicklecell-ourvoice.blogspot.com/

The voice of people living with Sickle Cell Disease. For information, education, communication, finally, in our voice.

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This blog is currently rated a 4.40 out of a possible 5 based on 5 comments.

5 stars P.AllenJones

@Paula, there is no national register. But since the brother was 1 mile away the father may be close too. Check local hospitals for sickle cell clinics...they may be able to give you last names (mom doesn't know who the father is????) Check last names, maybe that will be a start.

Posted: July 2nd, 2009 | Report This Comment

4 stars Paula

I need some advice from anyone who can assist me. I work to assist children in foster care, reconnect with missing friends and family from their past. I have a youth who has sickle cell and therefore that is the only identification he has for his father. Am I correct in assuming that his father must have the sickle cell trait in order for the son to have it? Well my hope is that there is some sort of registery or something. The mother does not know who the father is and this you would really like to have some connection to his father. He was looking for his brother adn I was able to locate him. Amazingly enough, I discovered that the brother has been living 1 mile from him for the last 10+ years and neither one of them knew it. We will be introducing them to each other in the next few weeks.
If anyone has any suggestions on how I can locate this youth's father, who possibly has the sickle cell trait, that would be fantastic!

Thank You

Posted: May 4th, 2009 | Report This Comment

5 stars Erin Long

I am a parent of two small children that are living with Sickle Cell Disease this is a wonderful site.

Posted: March 3rd, 2009 | Report This Comment

3 stars Kimberly

Hey Everyone,

I'm conducting a research study about parents who have children with sickle cell disease. If you, or anyone you know has a child that has sickle cell disease, please go to or pass on the link below.

Thanks so much!

Kim

https://www.surveymonkey.com/s.aspx?sm=r_2fpHNRs_2b0XxYT1r3ppYq_2fA_3d_3d

Posted: February 3rd, 2009 | Report This Comment

5 stars P.Allen

good work

Posted: December 11th, 2008 | Report This Comment

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