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Predictive Health Ethics Research (PredictER) is a multidisciplinary research, policy, and public education program of the Indiana University Center for Bioethics funded by a grant from the Richard M. Fairbanks Foundation, Inc., Indianapolis.

Recent Posts Tagged With 'legislation'

• The Best Predictive Health Ethics Blogs - June 2008

  Posted on Monday June 30th, 2008 at 14:46 in blogs, direct-to-consumer, education, employement, ethics, genetic testing, health promotion, law, legislation, personalized medicine, policy, prenatal genetic diagnosis

  California and Direct-to-Consumer Genetic Testing:California's decision to send cease-and-desist letters to thirteen direct-to-consumer genetic testing companies (including 23andME, deCODEme, Knome, a...

• The BiDiL Debate: Can "race" serve as a proxy for groups with shared "genetic" characteristics?

  Posted on Friday June 27th, 2008 at 14:10 in drug-development, legislation, personalized medicine, policy, race

  Following the debate surrounding the FDA's 2005 approval of BiDiL – a drug to be marketed to treat African-Americans at risk for heart failure – David e. Winickoff and Osagie K. Obasogie propose r...

• GINA, The Good News: Engaging the Public

  Posted on Saturday June 7th, 2008 at 14:12 in beasley, discrimination, genetic information, gina, legislation, public engagement

  This is the third post in a series of posts in which I share what I see as the ups and downs of the Genetic Information Nondiscrimination Act of 2008 (GINA or H.R. 493). In this post I address a pote...

• The Best Predictive Health Ethics Blogs - May 2008

  Posted on Saturday May 31st, 2008 at 10:06 in blogs, clinical trials, elsi, ethics, eugenics, fda, gina, google, hipaa, informed consent, insurance, legislation

  It was a busy month for predictive health news: the president signed GINA, Francis Collins announced his eminent retirement, bloggers reported from important conferences at Case Western and Cold Sprin...

• GINA, The Bad News: Adverse Selection

  Posted on Thursday May 29th, 2008 at 12:54 in discrimination, genetic information, gina, insurance, legislation

  This is the second post in a series of posts in which I share what I see as the ups and downs of the Genetic Information Nondiscrimination Act of 2008 (GINA or H.R. 493).Although the legislation will ...

• The Good News: GINA; The Bad News ... ?

  Posted on Friday May 23rd, 2008 at 17:09 in beasley, discrimination, genetic information, gina, legislation

  A few weeks ago, congress passed the Genetic Information Nondiscrimination Act of 2008 (GINA), a much anticipated piece of legislation, nearly thirteen years in the making. Since the first version of...

• Best Predictive Health Ethics Blogs - March, 2008

  Posted on Monday March 31st, 2008 at 21:21 in cystic fibrosis, data sharing, gattaca, genetic testing, legislation, medical records, ownership, Privacy

  See February and January 2008 for prior reviews of the best predictive health ethics blogs. I have limited this month's installment to the ten posts. If, after reading these, you believe I've omitte...

• Texas: Your Boss, Your Medical Records and the Information Economy

  Posted on Saturday March 22nd, 2008 at 15:20 in employement, insurance, legislation, medical records, Privacy, texas

  According to the CDC's Public Health Law News (19 March 2008) and the Houston Chronicle, Texas is now the first state in the nation to require (as of Jan. 1, 2008) that insurance providers hand over e...

• GINA and the "Axis of Evil"?

  Posted on Thursday February 21st, 2008 at 12:51 in discrimination, genetic information, gina, insurance, legislation

• Sharing Patient Health Records: Wisconsin Assembly Bill 793

  Posted on Friday February 15th, 2008 at 14:29 in disclosure, drabiak, hipaa, legislation, medical records, wisconsin

• A Public Cord Blood Bank in Indiana? Reviewing House Bill 1020

  Posted on Saturday January 26th, 2008 at 11:40 in biobanks, cord-blood, drabiak, Indiana, informed consent, legislation

• Cord Blood Biobanking: Indiana Legislative News

  Posted on Tuesday January 22nd, 2008 at 19:43 in biobanks, cord-blood, Indiana, legislation

• GINA: Behind-the-Scenes Veto Threat

  Posted on Tuesday January 15th, 2008 at 16:57 in discrimination, genetic information, gina, legislation

• GINA? Not in the omnibus.

  Posted on Wednesday December 19th, 2007 at 09:18 in discrimination, genetic information, gina, legislation

• Predictive Health Legislative Update: GINA, HIPSA and more ...

  Posted on Monday December 17th, 2007 at 11:20 in biobanks, Cancer, genetic information, gina, hipsa, legislation, medical records, pediatrics, Privacy