Blog Detail
Taking a deep breath
http://hopeandava.blogspot.com/
A cancer survivor and her family, including her youngest daughter's medical issues. Just taking a day at a time.
- Added on: Aug 27th, 2008
- Country: United States
- Language: English
- Author: Hope
- Listed in: Moms Parenting
- Tags: children Cancer friends miracle neuroblastoma laryngomalacia
Recent Posts
Home:)
I know I left some of you confused. Ava went downhill fast on Friday evening and what I thought was a trip for fluids turned into another stay at hotel childrens. I'm still confused and waiting for more info. Some of the tests are highly special...
Wednesday
Ava gets to go home today! She will follow up with genetics and GI in the next couple weeks for possible metabolic disease. We will start checking her blood glucose at home....
anyone know?
Does anyone have experience with elevated bicarbs for prolonged periods? This remains one of Ava's problems. Any input? I don't have a computer here....
Tuesday
Today is about the same as yesterday. Her IV infiltrated again so the IV team was called again. Her other hand is now swollen and she's sporting a new IV in her foot.They're running out of places. She now has blood in her stool too. Have I mentione...
Monday Update
The doctors are calling Ava a puzzle. They are still thinking she has a metabolic disorder. They are rare and there are many. GI has been called. Still no drinking or playing. Not going home obviously. The good news is her airway has remained stabl...
upate
A quick update for everyone. Ava was admited to cinci childrens liberty campus on friday and transferred via ambulance to downtown childrens on saturday. It is believed she may have a metabolic disorder. These are usually rare and we won't get resul...
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