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The Fibromyalgia Experiment
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Trying to find a job that I can handle with fibromyalgia
Recent Posts Tagged With 'fibromyalgia support'
Fibro Guilt
Since I have fibromyalgia but look fairly normal I often feel guilty for having to take care of myself. I know that a lot of healthy people balance work, social lives and community responsibilities. I can really balance only one of these things so I ...
Where I Went Wrong with Blogging
I have been blogging for several years. I have fibromyalgia so it has been the main source of my income but it has never taken off to the point that I could buy a house, a manufactured home or even brand name groceries. I’m not complaining beca...
The Straw
I try to stay positive about my situation in life and fibromyalgia in general. I usually do an ok job of this but sometimes it just gets overwhelming. I wasn’t feeling well last week and I hadn’t gone shopping in a while because I was wai...
The Importance of Flexibility
If I could tell fibromites and friends of fibromites one piece of advice it would be to make your life flexible. I find that I can accomplish a lot if I work at my own pace. That’s why I love my job. It’s so important and helpful that I c...
Dear Non Fibromites,
If I hesitate when you ask me to perform a simple task like going shopping with you, there is a reason. If you ask me to go do something social and I say no there is probably a reason. It’s not that I don’t like you, it just costs too muc...
How I didn’t Cure Fibromyalgia
Sometimes I get very frustrated with all of comments and emails I get about how to cure fibromyalgia. Yes, I guess I really appreciate that people want me to get better. However, I don’t like feeling guilty or pressured because I don’t wa...
Today fibro feels like…a camping metaphor
You know when you go camping and you’re making smores and everything is great. There is that one charred log that you poke around and it just crumbles? Today I can relate because that’s the closest thing I can think of to describe the pai...
Fibro and Anxiety
Many people who have fibromyalgia also suffer from some form of anxiety and depression. To me it’s only logical if a person is in almost constant pain and basically has their life taken away from them they will be depressed. I’ve tried ev...
Fibro-iversary
On August 28th is the anniversary of when I got sick. At last I think it’s that day. I used to get really depressed around this time of year, thinking of everything that I’ve lost. Now I can hardly remember if it’s been 14 or16 year...
How nice it is to be back to normal
Today is a normal pain day. I’m actually really excited about this. It’s been snowing all week. You can laugh if you want to, I would if it hadn’t happened to me. That also means it’s been cloudy & I haven’t seen the...
Fibro & light therapy
It is snowing. It’s been snowing all week. It’s March, almost April…and it’s snowing. It’s taking a toll on my body & putting me deeper into my constant fibromyalgia flare. I’m about to have fisticuffs with Mot...
Are these “chairs” comfy?
I just saw on the news that some local elementary schools are switching over their computer lab chairs to balance balls. In my day that just would’ve led to chaos & not a lot of work getting done on the computer. It sounds more like gym. I ...
Pain, pain go away
The good thing about having a fibromyalgia blog is that I can look back & see the last time I was in remission. Apparently it was in September of 2007. I rarely have remissions & then it only lasts for a few days. Most of the other fibromites...
Does fibro make you cranky?
It’s hard to tell if fibromyalgia makes me irritable or if it’s just naturally my sarcastic personality. I wouldn’t say that crankyness is a symptom of fibromyalgia, but it seems to be an effect of it. I don’t usually have a t...
Fibro on Yahoo News
I was looking at the Yahoo homepage on Sunday & thought, “Ohh I know that word.” It was fibromyalgia. For awhile, I thought that Yahoo had a new search plan to spy on me to better tailor their results to my needs. They have to compete...
Hints for dealing with fibro
I’ve seen lists of 50-100 fibromyalgia symptoms. That’s a lot to deal with in just one body. Then there’s all of the side effects of the medications to fight the symptoms. I have no idea what that list looks like. I know that a lot ...
You have a cold?
It seems like whenever I go to the doctor with a weird symptom I’m just told “You have fibromyalgia, what do you expect?” Since we don’t know a lot about this disease, the medical profession just seems to make it an all inclus...
I can wear rings again!
Before I got sick, I would always wear several rings. As I got older, I would buy myself a new gemstone ring every Valentines Day. To me, getting older meant being able to upgrade my jewelry & finally have nice things. I was devastated when I got...
I was right all along
It’s almost impossible explaining to someone why I have to work from home. Well, at least it’s impossible to explain to a healthy person. They usually suggest that I try a job as a personal assistant. They don’t realize that I sleep...
Dear Migraine Sufferers
For years I thought that I knew what pain was. I didn’t understand why people complained so much about something that was “just a really bad headache.” I thought I knew what pain was since I have fibromyalgia. Today, I had my first ...
How to relax when there’s so much stress
This time of year, both political parties seem to be able to trace exactly how the world is going to end if the other people get elected. I want to be informed. However, it makes it impossible for me to relax. Being sick all of the time & som...
TMJ & Stress
When I went to see the orthodontist about TMJ, I thought there was going to be some magical reason why my jaw was popping. Instead, he said that he was seeing this a lot because there was just so much stress out there. He told me to notice how my jaw...
How to pick a chair comfortable enough for fibromyalgia
I don’t know what furniture shopping is like for healthy people, but it’s literally a pain for me. I probably have to sit on three hundred couches until I actually find one that I like. So when I needed a new chair, I was expecting it to ...
Pain…deep, deep, deep pain
Healthy people often tell me “You’re just so stuck in this sick frame of mind. You just need to find a job that you can handle.” I was recently offered a few jobs tutoring. I decided to take them so I’d be able to afford d...
Making a list & checking it twice
When I’m in pain I think really profound thoughts like “I am in pain” or “I wish the pain would stop”. The other day I sat down & made a list of every symptom & every home remedy/medicine/coping mechanism that mi...
How to turn a bad fibro day into a good fibro day
One of the biggest challenges I’ve had with fibromyalgia is figuring out how to be happy. It’s difficult when I have extreme fatigue & pain. However, this is pretty much an every day reality with fibromyalgia. Here are a few things th...
This one goes out to the fibromites
Every once in awhile I’ll find a song that really relates to fibromyalgia, even though it has nothing to do with fibromyalgia. Hurricane & Fire Survival Guide by Cloud Cult was one of those songs. I could definitely relate to the line ̶...
Whats the secret ingredient in Mederma?
Several people have told me that Mederma really works, even a pharmacist. I was skeptical because some of my scars are from over a decade ago & Mederma is pretty expensive. So I was looking through the ingredients & was surprised to see tha...
Current mood: pain
I’m not a huge fan of myspace. I’m really not into social networking at all. I basically use the internet to look at car insurance quotes & read blogs. However, I do envy one part of myspace. The cute emoticons that say current mood. ...
Tips for fibromites
After writing my article about how to help someone with fibromyalgia, I wondered is that all there is? I wish I had more tips & advice. From talking with family & friends & going to support groups I know that it’s hard to live with ...
