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Walk with the Riedmiller Family

Walk with the Riedmiller Family

http://www.joeyswalk.blogspot.com

Welcome to our blog! We are a crew of 7 - Shawn, Rachelle, John, Tommie, Joey, Emma, & Abbie. Our son Joey was born in 2004 with a rare genetic condition called Cornelia de Lange Syndrome. Join us as we try to raise awareness about CdLS, enjoy our precious moments, and survive the daily chaos we call our lives!

subscribe Recent Posts

  • Our little cover boy...

    Posted on Monday November 16th, 2009 at 13:01 in reaching out, cdls, cornelia de lange syndrome, cdls awareness

    Is that a handsome face or what? Joey is on the cover of the latest issue of Reaching Out...the newsletter that the CdLS Foundation publishes 4 times a year. Reaching Out is full of all the latest news about Cornelia de Lange Syndrome, fundraising ...

  • Senseless

    Posted on Monday November 9th, 2009 at 13:51 in senseless, cdls, cdls awareness

    The other day here in our town, a 12 year old boy was killed in a car accident. The car was driven by his 17 year old brother. Today their mother had to bury one of her sons. Last night, a 3 year old boy in a different state died in his parents arms ...

  • Halloween adventures...

    Posted on Tuesday November 3rd, 2009 at 12:48 in cornelia de lange syndrome, halloween 2009, cdls awareness

    Halloween has passed. Setting the clocks back an hour has passed. 23 days til Thanksgiving. Only 51 shopping days left til Christmas. Is it just me or is 2009 getting away from all of us? I feel like everything is happening in the blink of an ey...

  • X marks the spot

    Posted on Tuesday October 27th, 2009 at 20:34 in report card, cdls, cornelia de lange syndrome, cdls awareness

    I'm not sure if you can read the above picture, but it is Joey's Kindergarten report card. He brought it home in his folder the other day. At first I was so excited! I'm thinking to myself I can't wait to look at it! I am so proud of how well he is d...

  • "You tried to win tickets???"

    Posted on Thursday October 22nd, 2009 at 20:12 in pumpkin patch, cdls, cornelia de lange syndrome, how tall this fall

    Shawn called me from work a couple weeks ago and said "Guess what? I just won 4 tickets to Vala's Pumpkin Patch on the radio! I was caller number 5!" Now Shawn is a good sport and usually goes along with any crazy schemes we may have of taking all...

  • Do You See Me?

    Posted on Saturday October 17th, 2009 at 12:27 in cdls, cornelia de lange syndrome, cdls awareness

    The above video was made by a good friend of our family. She used to be Joey's Service Coordinator for the Early Development Network up until he turned 3. She had a vision of giving all kids with disabilities a strong voice...and an opportunity to ...

Comments & Reviews

This blog is currently rated a 4.00 out of a possible 5 based on 1 comment.

william2233

4 stars william sawyers

Great site, great pictures

Posted: July 19th, 2009 | More Reviews From william2233 | Report This Comment

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