Blog Detail

YLaurie

http://www.laurieyeh.blogspot.com/

My journey of living with,Ehlers Danlos Syndrome, Chiari, Syringomyelia, Tethered Cord, Osteopenia, and other related conditions.

• Added on: Mar 11th, 2008
• Country: United States
• Language: English

• Author: Laurie
• Listed in: Health
• Tags: osteopenia chiari syringomyelia tethered cord ehlers danlos syndrome postural orthostatic tachycardia syndrome

Recent Posts

• MRI Results

  Posted on Thursday October 29th, 2009 at 18:10 in syringomyelia, the chiari institute, tethered cord syndrome

  I went to my appointment yesterday for an MRI of my thoracic spine. I had imaging done in New York for The Chiari Institute in August but due to a "scheduling mistake" my thoracic spine was not scanned. Dr. Insigna at TCI recommended that I have an M...

• Doctors, Doctors, and More Doctors

  Posted on Wednesday October 28th, 2009 at 02:02 in kyle petty, syringomyelia, the chiari institute, ehlers-danlos syndrome, queen anne's revenge, victory junction, spinal cord stimulator, dr. francomano

  Wondering, will it ever end? I was thinking tonight that it has been a little more than 3 years since I was first diagnosed with syringomyelia and started this nightmare for myself and my boys. Since that time I have learned more than I ever wanted t...

• A Big Thanks to Give Kids the World and IAAPA

  Posted on Friday October 9th, 2009 at 13:07 in downtown disney, make a wish foundation, letters to god, give kids the world, t-rex cafe, iaapa, build a dino

  I mentioned in an earlier post that Hunter was given a World Passport during his Make-A-Wish trip from GKTW and IAAPA. We have been very busy over the past months visiting amusement parks and attractions along the East Coast.Our first destination on ...

• Back Online

  Posted on Wednesday September 23rd, 2009 at 19:33 in charleston sc, the chiari institute, ehlers-danlos syndrome, postural orthostatic tachycardia syndrome, chiari 1 malformation

  So I am finally back online after our move to Charleston SC. I feel awful about leaving my last post up for so long without filling my readers in on what I found out at TCI. After getting back online I found many emails and messages from many concern...

• Heading back up to The Chiari Institute

  Posted on Tuesday August 25th, 2009 at 10:40 in the chiari institute, chiari 1 malformation, manhasset diagnostic imaging, tethered cord syndrome

  I'm heading back up to The Chiari Institute because some of my symptoms from before having the tethered cord surgery have returned. I first started to notice an increase in my symptoms after flying to Madison WI for the ASAP conference last month. I ...

• Documentary on POTS coming soon from DINET

  Posted on Monday August 10th, 2009 at 10:31 in pots, postural orthostatic tachycardia syndrome, dinet.org

  Check out DINET.org...

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